Date: December 10th, 2025 5:45 PM
Author: The Chamber of Hewn Stone
Paige Shiver is a college student diagnosed with Pompe Disease, a rare disorder that causes muscle and respiratory weakness. She actively raises awareness for her condition and participates in events to support research for both Pompe Disease and related illnesses.
Background Information
Paige Shiver is a college student and the daughter of Jeff Shiver, a long-time scout for the Chicago Bears. She was an active individual, participating in running, cycling, and weightlifting until her health began to decline in early 2015.
Health Condition
In January 2015, Paige started experiencing severe fatigue and pain during physical activities. After consulting various specialists, she was diagnosed with Pompe Disease, a rare genetic disorder that affects muscle and respiratory function. This condition impacts approximately 1 in 40,000 people.
Symptoms and Treatment
Primary Symptoms: Muscle weakness, respiratory issues, and significant pain.
Treatment: Paige receives bi-weekly infusions of Lymizime, a medication that helps manage her condition. She also takes steroids, Tylenol, and Benadryl to mitigate side effects.
Advocacy and Awareness
Despite her challenges, Paige is committed to raising awareness for Pompe Disease and related conditions. She plans to participate in the Muscular Dystrophy Association's Muscle Walk to support research and funding for these diseases.
Paige's story highlights the struggles faced by those with rare diseases and the importance of ongoing research and support.
(http://www.autoadmit.com/thread.php?thread_id=5808820&forum_id=2)#49500397)