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This reddit story is brutal: "Misdiagnosed w/ anxiety for years, now in wheelcha

https://www.reddit.com/r/TwoXChromosomes/comments/ox3unm/my_...
curious white nursing home multi-billionaire
  08/03/21
saving lives day in and day out!
Confused meetinghouse
  08/04/21
This happened
Geriatric wonderful stock car hall
  08/03/21
you doubt it? I've heard of dozens of stories like this IRL...
curious white nursing home multi-billionaire
  08/03/21
Why wouldn't it? Neurologists largely do diagnosis of exclus...
Onyx shivering pocket flask dilemma
  08/03/21
I suppose it’s possible. MS is often a diagnosis of ex...
Geriatric wonderful stock car hall
  08/03/21
...
odious trust fund
  08/04/21
Guy I used to work with was misdiagnosed by the Army for yea...
Onyx shivering pocket flask dilemma
  08/03/21
Doctors are fraud but what difference would it make. Also 5...
drab national
  08/03/21
retarded flame
stirring flushed mad-dog skullcap
  08/03/21
...
bistre forum
  08/03/21
The problem is healthcare is not equipped to deal with peopl...
Cerebral crimson shrine
  08/03/21
cr. One of the things COVID has taught me is that we know fu...
Onyx shivering pocket flask dilemma
  08/03/21
It is odd to me that medical hubris has progressed to such a...
Cerebral crimson shrine
  08/03/21
I'll let you know my thoughts on this after I figure out how...
Onyx shivering pocket flask dilemma
  08/03/21
The only thing more detrimental to a developing man's courag...
Cerebral crimson shrine
  08/03/21
(guy with anxiety)
Onyx shivering pocket flask dilemma
  08/06/21
This does not surprise me. MS often is misdiagnosed for yea...
vigorous yapping public bath
  08/03/21
think about how many psycho hypochondriac women this guy mus...
Insecure reading party heaven
  08/03/21
Lol
Umber Field
  08/03/21
...
Emerald Hilarious House
  08/04/21
Many doctors don't seem particularly bright despite the high...
Judgmental rehab
  08/03/21
People are now fully commoditized, which means they're hardl...
Cerebral crimson shrine
  08/03/21
The world is a Rube Goldberg machine destined to inflict ann...
drab national
  08/03/21
...
alcoholic doctorate
  08/04/21
...
Emerald Hilarious House
  08/04/21
...
Razzmatazz mood
  08/04/21
...
Amethyst concupiscible school cafeteria
  08/03/21
This seems like bullshit. If the symptoms are as was describ...
embarrassed to the bone appetizing electric furnace office
  08/03/21
Maybe they all thought it was single sclerosis and didnt kno...
Cerebral crimson shrine
  08/03/21
Good point
bistre forum
  08/03/21
A lot of them wil literally try everything other than that b...
vigorous yapping public bath
  08/04/21
A common problem is when they don't recognize the condition ...
Judgmental rehab
  08/03/21
Why do you decide to post normally once in a while? Stop rui...
embarrassed to the bone appetizing electric furnace office
  08/03/21
...
floppy range pisswyrm
  08/03/21
lol
odious trust fund
  08/04/21
The same thing happens when the symptoms don't exactly match...
Judgmental rehab
  08/03/21
...
Vibrant Trailer Park Circlehead
  08/03/21
It makes so much sense that you're a doc.
odious trust fund
  08/04/21
i knew a dude who was told he had panic attacks to explain h...
Trip angry psychic
  08/04/21
...
Comical brethren gas station
  08/04/21
How do you know it's dumb though?
fighting boyish casino marketing idea
  08/04/21
...
Comical brethren gas station
  08/04/21
(wheezing, perpetually "ill" jewish xo poster)
Arousing university
  08/04/21
80% of doctors should be killed. Pure fraud
Razzmatazz mood
  08/04/21
...
supple roast beef
  08/04/21
trust the experts!
supple roast beef
  08/04/21


Poast new message in this thread



Reply Favorite

Date: August 3rd, 2021 9:00 PM
Author: curious white nursing home multi-billionaire

https://www.reddit.com/r/TwoXChromosomes/comments/ox3unm/my_illness_was_misdiagnosed_as_anxiety_for_years/

After seeing a couple of similar stories on here I thought I'd share my own story about being misdiagnosed with anxiety for years.

Since about 2017 I've been having a myriad of bizarre symptoms. Random numbness, nerve pain (sometimes severe), exhaustion so severe I've had to quit my job, intense brain fog, vision problems leaving me at times unable to see in my right eye, tingling in my limbs, slurred speech to the point where I've been accused of being drunk, plus other strange and frightening things.

I've seen around 4 different Doctors over the years about these issues. Every single time I would be diagnosed with anxiety and essentially felt as though I was considered a hysterical hypochondriac. At one point a Doctor told me the reason for all my symptoms was because 'driving makes some people anxious, and you drive nearly every day.' Yep. Apparently having immense pain in my back and neck, losing vision in my eye, slurring my speech, and everything else I've experienced is because I drive a car.

That was about 18 months ago. I went home feeling humiliated and stupid. I gave up and have never tried to get a diagnosis again.... Maybe I was just crazy.

That was until a couple of weeks ago when I woke up with completely numb feet. I wasn't scared though, I was used to it. I've dealt with this shit for years and this was just yet another instance of my body being weird. Hoping it would be gone by the next day I ignored it, only to wake up the day after to find that I had completely lost feeling from the chest down.

I went to hospital where I stayed for over a week, and long story short I was diagnosed with a condition called transverse myelitis caused by an 'acute' Multiple Sclerosis flair up.

They did MRI scans on my brain and spine. Some of the many lesions I had were very old, which, according to the neurologist, means that I have likely had MS for years.

Although once diagnosed with my kind of MS there's no way of entirely eliminating the chances of a relapse, there are treatments available and precautions one can take which mean that relapses are less likely to happen and less severe. Because I was undiagnosed and untreated for literally years and have had a severe relapse, I have been in a wheelchair since my diagnosis and I have no idea if I will ever be able to walk normally ever again. I am 27 and I am in a fucking wheelchair. I can't feel ANYTHING below my chest except nerve pain and constant, awful pins and needles.

I've spoken to 2 male friends since my diagnosis. One with epilepsy, and one with MS. Both of my male friends, even the one with MS- who had almost identical symptoms to me, were referred to neurologists immediately. No 'you're anxious because you drive a car' bullshit.

So to any women out there being dismissed by health professionals as I was for fucking years- I feel you. I don't know what else to say except that I am heartbroken and furious that so many of us keep having to go through being labelled as essentially 'hysterical women' when we know we aren't. Not being believed is devastating when you can feel your brain and body failing.

Sorry this is poorly written. I actually have an English Degree but the MS has seemingly robbed me of the ability to think straight enough to write as well as everything else.

EDIT: Thank you all SO MUCH for the support. I'm sitting here with tears in my eyes reading through everything. I know I will keep coming back to read these lovely comments when I have a bad day. I'm also so, so sorry to hear all these stories from other women- I feel so lucky that my illness is not life threatening.

Please don't worry about giving me any more awards :)

For those of you that don't believe me - thank you for proving my point.

Finally - I was diagnosed less than 2 weeks ago. Please do not PM me asking if I think you or your loved one has MS or what advice I can give you. My heart really goes out to you but I really am in no position to advise.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892461)



Reply Favorite

Date: August 4th, 2021 11:08 AM
Author: Confused meetinghouse

saving lives day in and day out!

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895025)



Reply Favorite

Date: August 3rd, 2021 9:01 PM
Author: Geriatric wonderful stock car hall

This happened

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892467)



Reply Favorite

Date: August 3rd, 2021 9:03 PM
Author: curious white nursing home multi-billionaire

you doubt it? I've heard of dozens of stories like this IRL of failed / missed MS diagnoses.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892474)



Reply Favorite

Date: August 3rd, 2021 9:03 PM
Author: Onyx shivering pocket flask dilemma

Why wouldn't it? Neurologists largely do diagnosis of exclusion, but they're always seeing symptoms that can have a billion causes

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892477)



Reply Favorite

Date: August 3rd, 2021 9:05 PM
Author: Geriatric wonderful stock car hall

I suppose it’s possible. MS is often a diagnosis of exclusion. Surprised that her doctors never sent her for a brain scan with to assuage her fears.

Anxiety can mimic any neurological symptom. Plenty of people sure that they have ALS end up having benign fasciculation syndrome.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892491)



Reply Favorite

Date: August 4th, 2021 12:00 PM
Author: odious trust fund



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895246)



Reply Favorite

Date: August 3rd, 2021 9:02 PM
Author: Onyx shivering pocket flask dilemma

Guy I used to work with was misdiagnosed by the Army for years. Every time he described his symptoms they accused him of faking it. He ended up getting a ridiculous fat payout after he got out and got a proper dx. Had a very pimp van and ramp setup.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892470)



Reply Favorite

Date: August 3rd, 2021 9:06 PM
Author: drab national

Doctors are fraud but what difference would it make.

Also 50/50 it’s Lyme which fraud doctors insist doesn’t exist

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892494)



Reply Favorite

Date: August 3rd, 2021 9:06 PM
Author: stirring flushed mad-dog skullcap

retarded flame

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892497)



Reply Favorite

Date: August 3rd, 2021 10:06 PM
Author: bistre forum



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892861)



Reply Favorite

Date: August 3rd, 2021 9:08 PM
Author: Cerebral crimson shrine

The problem is healthcare is not equipped to deal with people's anxiety. they think its a medical condition rather than an emotional one. since anxiety is not well understood (it's "vague") when they see physical symptoms associated with it, it's the default diagnosis. that's what happened here.

the way to fix this is to not diagnose anxiety as a medical condition, but an issue of emotional regulation. that would prevent the misdiagnosis of true medical conditions as anxiety. it would also actually help frame the treatment of the emotional condition. the treatment for anxiety should involve the treatment of emotion itself, not the neurological underpinnings, which are for practical purposes unknown.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892508)



Reply Favorite

Date: August 3rd, 2021 9:12 PM
Author: Onyx shivering pocket flask dilemma

cr. One of the things COVID has taught me is that we know fuck all about what constitutes a "chemical imbalance" because everyone nervous system has its own unique recipe for what is needed to achieve perfect homeostasis. Disrupt angiotensin a little bit and you open up a Pandora's box. We don't even know when or even why angiotensin evolved. Its original function was likely not the function it serves now, same as cortisol and a bunch of other shit. Sapolsky only showed us the tip of the iceberg.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892519)



Reply Favorite

Date: August 3rd, 2021 9:17 PM
Author: Cerebral crimson shrine

It is odd to me that medical hubris has progressed to such an extent that we've collectively bought into the idea that the best way to control someone's emotions is indirectly by try to manipulate not well understood brain chemicals. Why are we not talking about regulating emotions with other mental faculties? The default approach seems like a glaring category mistake.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892538)



Reply Favorite

Date: August 3rd, 2021 9:18 PM
Author: Onyx shivering pocket flask dilemma

I'll let you know my thoughts on this after I figure out how to cure my crippling anxiety.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892542)



Reply Favorite

Date: August 3rd, 2021 9:20 PM
Author: Cerebral crimson shrine

The only thing more detrimental to a developing man's courage than pathologized anxiety is the concept of anxiety itself.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892552)



Reply Favorite

Date: August 6th, 2021 6:09 PM
Author: Onyx shivering pocket flask dilemma

(guy with anxiety)

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42908868)



Reply Favorite

Date: August 3rd, 2021 9:35 PM
Author: vigorous yapping public bath

This does not surprise me. MS often is misdiagnosed for years because the symptoms come and go. Have a case where this girl had headaches, vision loss, numbness, weakness for 10+ years before getting hit by my negligent driver. She went to the doctor all the time for “post concussive syndrome” for 2 more years before being diagnosed with MS. Probably had it the whole time

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892651)



Reply Favorite

Date: August 3rd, 2021 9:40 PM
Author: Insecure reading party heaven

think about how many psycho hypochondriac women this guy must see every day to misdiagnose textbook MS as anxiety.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892698)



Reply Favorite

Date: August 3rd, 2021 10:25 PM
Author: Umber Field

Lol

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892969)



Reply Favorite

Date: August 4th, 2021 8:43 AM
Author: Emerald Hilarious House



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42894525)



Reply Favorite

Date: August 3rd, 2021 9:43 PM
Author: Judgmental rehab

Many doctors don't seem particularly bright despite the high admission standards and lengthy education. It's a paradox

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892724)



Reply Favorite

Date: August 3rd, 2021 9:45 PM
Author: Cerebral crimson shrine

People are now fully commoditized, which means they're hardly people any longer.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892741)



Reply Favorite

Date: August 3rd, 2021 9:57 PM
Author: drab national

The world is a Rube Goldberg machine destined to inflict annoyance and pain in roundabout ways. What better way to do that in this situation than to have fake smart people who think they know everything and lack empathy and don’t care being appointed by society to deal with every possible physical and mental ailment? Losers like me get to be extra annoyed because we have higher IQs and much lower GPAs/incomes than these insipid drones. To top it off, make the whole thing so expensive and laden with waste that it basically ruins the economy.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892820)



Reply Favorite

Date: August 4th, 2021 7:51 AM
Author: alcoholic doctorate



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42894415)



Reply Favorite

Date: August 4th, 2021 8:44 AM
Author: Emerald Hilarious House



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42894529)



Reply Favorite

Date: August 4th, 2021 12:28 PM
Author: Razzmatazz mood



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895410)



Reply Favorite

Date: August 3rd, 2021 10:01 PM
Author: Amethyst concupiscible school cafeteria



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892835)



Reply Favorite

Date: August 3rd, 2021 10:01 PM
Author: embarrassed to the bone appetizing electric furnace office

This seems like bullshit. If the symptoms are as was described in the second paragraph I can’t imagine multiple docs wouldn’t consider an MS diagnosis

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892833)



Reply Favorite

Date: August 3rd, 2021 10:02 PM
Author: Cerebral crimson shrine

Maybe they all thought it was single sclerosis and didnt know what to do

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892839)



Reply Favorite

Date: August 3rd, 2021 10:06 PM
Author: bistre forum

Good point

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892864)



Reply Favorite

Date: August 4th, 2021 1:05 AM
Author: vigorous yapping public bath

A lot of them wil literally try everything other than that bc a MS diagnosis is so devastating

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42893770)



Reply Favorite

Date: August 3rd, 2021 10:03 PM
Author: Judgmental rehab

A common problem is when they don't recognize the condition they conclude that there is no problem and try to convince you that it's psychosomatic or whatever. There are a lot of conditions that individually are uncommon but the probability of getting some one of them is additive.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892845)



Reply Favorite

Date: August 3rd, 2021 10:07 PM
Author: embarrassed to the bone appetizing electric furnace office

Why do you decide to post normally once in a while? Stop ruining your awful shtick

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892866)



Reply Favorite

Date: August 3rd, 2021 10:12 PM
Author: floppy range pisswyrm



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892900)



Reply Favorite

Date: August 4th, 2021 12:00 PM
Author: odious trust fund

lol

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895252)



Reply Favorite

Date: August 3rd, 2021 10:07 PM
Author: Judgmental rehab

The same thing happens when the symptoms don't exactly match the textbook. It's in your head, there's nothing wrong!

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892869)



Reply Favorite

Date: August 3rd, 2021 10:28 PM
Author: Vibrant Trailer Park Circlehead



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42892986)



Reply Favorite

Date: August 4th, 2021 12:01 PM
Author: odious trust fund

It makes so much sense that you're a doc.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895253)



Reply Favorite

Date: August 4th, 2021 8:09 AM
Author: Trip angry psychic

i knew a dude who was told he had panic attacks to explain his ridiculous stomach pain and shortness of breath. after going to the ER 3-4 times and getting scripts for paxil and xanax they finally gave him an mri/cscan and found stage 4 stomach cancer. he died 9 months later at the age of 37.

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42894452)



Reply Favorite

Date: August 4th, 2021 12:03 PM
Author: Comical brethren gas station



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895266)



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Date: August 4th, 2021 12:13 PM
Author: fighting boyish casino marketing idea

How do you know it's dumb though?

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895319)



Reply Favorite

Date: August 4th, 2021 12:14 PM
Author: Comical brethren gas station



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895325)



Reply Favorite

Date: August 4th, 2021 12:50 PM
Author: Arousing university

(wheezing, perpetually "ill" jewish xo poster)

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895521)



Reply Favorite

Date: August 4th, 2021 12:27 PM
Author: Razzmatazz mood

80% of doctors should be killed. Pure fraud

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895403)



Reply Favorite

Date: August 4th, 2021 12:50 PM
Author: supple roast beef



(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895523)



Reply Favorite

Date: August 4th, 2021 12:53 PM
Author: supple roast beef

trust the experts!

(http://www.autoadmit.com/thread.php?thread_id=4892394&forum_id=2#42895540)